Learning to live with a disability

April 26, 2016

It’s been quite some time since I have made a blog post, and I would like to focus more on this blog and my writing, but it has been difficult. I was recently diagnosed with Fibromyalgia, and between the pain, trying to find a decent doctor, losing my job, trying to get social security benefits, and everything else in my life, writing hasn’t been on the forefront of my mind.

Having a disability is a learning process. Learning how far I can push myself to get done what needs to be done, learning what my limits are, learning what medications work, learning that a lot of people (including doctors) won’t believe me.

I have an amazing support system, so I am very lucky for that. My roommate and our boyfriend take care of me. They are wonderful. I have also met some fantastic ladies who also have fibro who have been very kind and supportive and helped me in ways they will never imagine. I have my mom, who is understanding and patient with my new flakiness and who helps me financially when she can.

And one of the hardest parts is money. I can’t work. But to get social security, I have to go through a lawyer, and it will take years. So where I was once the primary income earner in my household, now the onus is on my roommate and our boyfriend to support us, and they were only recently able to find full time work. And it sucks that they have to do that because not only do I hate not being independent, but that’s less time they are home taking care of me. My boyfriend told me he worries when he’s gone that I might fall and hurt myself or otherwise need his help. And you know, that’s a valid concern. But we do what we have to.

And with this brief summary as to what is going on with me and why I haven’t updated, I have to ask for help. We need financial assistance to pay this month’s rent and bills, or our rent is going to be late (a tarnish on our rental history which will make it harder to get a different, cheaper place) and we’ll be playing catch up on bills for the rest of the year. Unless some kind souls can help and contribute even $1 at a time. If we can just get this next month’s rent and bills taken care of completely, we will be okay. So please, follow this link and if you cannot contribute any money, please share the link on social media. The stress of our financial situation has caused my anxiety levels to be at an all time high and in turn, caused my pain levels to skyrocket. So if that burden is lifted, our lives, and my treatment, will be made that much easier.

Thank You for you support,

Stephani AKA Gwen.




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